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    Why CPAPs Need to Be Available

    Water Closet
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    • MattSpellerM
      MattSpeller @scottalanmiller
      last edited by

      @scottalanmiller Alright so where we really disagree is acquisition and control of them.

      You have some good points clearly from experience!

      It really sounds like they should be treated more like a drug though. You have a perscription (of sorts), just need to buy one is the hurdle? I'm not sure how you can keep everyone safe without making a specific exception for this device without opening a hole for others to fall into.

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      • scottalanmillerS
        scottalanmiller @MattSpeller
        last edited by

        @MattSpeller said:

        IMHO it's the same reason an aircraft bolt costs $20 where the hardware store costs $0.20.

        But that's not related. A bolt isn't life or death if you don't get it promptly. You can just ground an airplane. Grounding a human from breathing is the opposite. Killing people to make a point - that certification is worth more than lives.

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        • NicN
          Nic
          last edited by

          Just do what I did - buy a used one off craigslist while you wait for all the bureaucratic bullshit.

          scottalanmillerS 1 Reply Last reply Reply Quote 1
          • scottalanmillerS
            scottalanmiller @A Former User
            last edited by

            @Hubtech said:

            Youtube Video

            Pretty sure that's illegal in the US. Like making heroin. ๐Ÿ˜ž

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            • scottalanmillerS
              scottalanmiller
              last edited by

              @MattSpeller Edit: as to having to get a referral, I also disagree with you. I think they're quite necessary (though damned annoying). Not everyone cares enough to educate themselves on these devices and many would make very poor choices. That's not even getting into Mรผnchhausen cases etc.

              You clearly are unaware of how this works in the US. There is NO oversight from the doctors here. None. You go to a doctor, get them to write you a prescription. Then you go to a store and are completely on your own. You have to know all the terms and pick out the device yourself, the same as if no doctor is involved. The only thing that the doctor does is make it legal for you to buy one.

              So all of your logic doesn't hold up in the US. None of that applies at all. It is purely a barrier to getting what you need. There are no protections.

              Even if there were protections, the risk is so high and the protection so pointless. You put the innocent at risk in order to protect idiots from harming themselves. That's just wrong.

              MattSpellerM 1 Reply Last reply Reply Quote 0
              • MattSpellerM
                MattSpeller @scottalanmiller
                last edited by

                @scottalanmiller That's nothing like what I'm used to here!

                scottalanmillerS 1 Reply Last reply Reply Quote 0
                • scottalanmillerS
                  scottalanmiller @Nic
                  last edited by

                  @Nic said:

                  Just do what I did - buy a used one off craigslist while you wait for all the bureaucratic bullshit.

                  That's a good idea. Although I've put together some ways to acquire one now. There are some tricks for people who really know what to do.

                  Or just get one in Europe where healthcare is sensible.

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                  • scottalanmillerS
                    scottalanmiller @MattSpeller
                    last edited by

                    @MattSpeller said:

                    @scottalanmiller That's nothing like what I'm used to here!

                    The idea of controlling the creation of the devices I totally agree with. A CPAP should be a regulated device made to certain specs. But they should be available to people who need them.

                    They treat them like a drug. But drugs (nearly any) can be bought anywhere. Pharmacies are everywhere. But only really large cities sell CPAPs. And only a few dealers. You can't run to the corner and pick one up.

                    And pharmacies are open 24x7 a lot of places. Long hours at least. CPAP dealers are often 8x5!!

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                    • NicN
                      Nic
                      last edited by

                      In general, getting a CPAP right this minute isn't a life and death situation, which is why it can take so long. But I agree that the process could be faster and easier. At least a loaner right after your sleep study until you get a permanent one.

                      scottalanmillerS 1 Reply Last reply Reply Quote 0
                      • scottalanmillerS
                        scottalanmiller @Nic
                        last edited by

                        @Nic said:

                        In general, getting a CPAP right this minute isn't a life and death situation, which is why it can take so long. But I agree that the process could be faster and easier. At least a loaner right after your sleep study until you get a permanent one.

                        Problem is, for many people it really is life or death. Regulating something that might be life or death like it is a casual device isn't dangerously reckless and a complete disregard for human life no matter how infrequent it is.

                        Getting your first one is rarely life or death. But getting one later easily could be.

                        It's the people, typically, who develop central sleep apnea, not mechanical sleep apnea, who must have them no matter what. Thankfully at least I qualify for emergency power so that if the power goes out I get mine back earlier since I can't sleep until it comes back on.

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                        • DashrenderD
                          Dashrender
                          last edited by

                          Why does @MattSpeller and @scottalanmiller feel that a CPAP needs to be prescribed?

                          I'm all for the device itself having to be created under regulation for safety - but here's my question - if a person who quote unquote doesn't need one uses one, will they die?

                          scottalanmillerS MattSpellerM 3 Replies Last reply Reply Quote 0
                          • scottalanmillerS
                            scottalanmiller @Dashrender
                            last edited by

                            @Dashrender said:

                            Why does @MattSpeller and @scottalanmiller feel that a CPAP needs to be prescribed?

                            I don't feel that. I feel that it's completely unethical to have a doctor get to hold your life hostage when life saving devices are available and well known.

                            DashrenderD 1 Reply Last reply Reply Quote 0
                            • MattSpellerM
                              MattSpeller @Dashrender
                              last edited by

                              @Dashrender IMHO it's less about a specific device than it is about all of them. I am so unfamiliar with how it works down there that I'm only muddying the waters, I'll stay out of it.

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                              • DashrenderD
                                Dashrender @scottalanmiller
                                last edited by Dashrender

                                This post is deleted!
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                                • scottalanmillerS
                                  scottalanmiller @Dashrender
                                  last edited by

                                  @Dashrender said:

                                  I'm all for the device itself having to be created under regulation for safety - but here's my question - if a person who quote unquote doesn't need one uses one, will they die?

                                  No, they are completely safe to use when not needed. It is only when you need one and don't get one that there is risk. Prolonged use could create a dependency, potentially, I suppose. But there is no real risk.

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                                  • NicN
                                    Nic
                                    last edited by

                                    Usually it isn't immediate life or death. Yes over the long term it will shorten your life and make you die of a heart attack, but usually you've been living with it for a while before you even get diagnosed.

                                    There are some possible negative side effects, such as having the pressure too high and causing central apnea.

                                    The thing you have to remember is that you and I, Scott, are 3+ standard deviations above the mean intelligence, so we're perfectly capable of purchasing and setting up our own system. The other 99.9% of people aren't that smart ๐Ÿ™‚

                                    thanksajdotcomT scottalanmillerS 2 Replies Last reply Reply Quote 1
                                    • thanksajdotcomT
                                      thanksajdotcom @Nic
                                      last edited by

                                      @Nic said:

                                      Usually it isn't immediate life or death. Yes over the long term it will shorten your life and make you die of a heart attack, but usually you've been living with it for a while before you even get diagnosed.

                                      There are some possible negative side effects, such as having the pressure too high and causing central apnea.

                                      The thing you have to remember is that you and I, Scott, are 3+ standard deviations above the mean intelligence, so we're perfectly capable of purchasing and setting up our own system. The other 99.9% of people aren't that smart ๐Ÿ™‚

                                      I'd be curious where I fell...

                                      PSX_DefectorP 1 Reply Last reply Reply Quote 0
                                      • scottalanmillerS
                                        scottalanmiller @Nic
                                        last edited by

                                        @Nic said:

                                        The thing you have to remember is that you and I, Scott, are 3+ standard deviations above the mean intelligence, so we're perfectly capable of purchasing and setting up our own system. The other 99.9% of people aren't that smart ๐Ÿ™‚

                                        Other than being made intentionally obtuse, they are REALLY easy. There is only one setting. Just set the number that was on your old one, or make it feel similar, and away you go.

                                        NicN 1 Reply Last reply Reply Quote 0
                                        • NicN
                                          Nic @scottalanmiller
                                          last edited by

                                          @scottalanmiller said:

                                          @Nic said:

                                          The thing you have to remember is that you and I, Scott, are 3+ standard deviations above the mean intelligence, so we're perfectly capable of purchasing and setting up our own system. The other 99.9% of people aren't that smart ๐Ÿ™‚

                                          Other than being made intentionally obtuse, they are REALLY easy. There is only one setting. Just set the number that was on your old one, or make it feel similar, and away you go.

                                          True, but you do have to make sure you know the number that you're supposed to be at, and have a mask that fits properly. Again, easy for us, not so easy for the huddled masses ๐Ÿ™‚

                                          scottalanmillerS 1 Reply Last reply Reply Quote 0
                                          • scottalanmillerS
                                            scottalanmiller @Nic
                                            last edited by

                                            @Nic said:

                                            True, but you do have to make sure you know the number that you're supposed to be at, and have a mask that fits properly. Again, easy for us, not so easy for the huddled masses ๐Ÿ™‚

                                            Do either of those matter though? I can use a higher number or a different mask pretty easily.

                                            But more importantly, neither of those services were provided to me the last time that I got a CPAP. So if those are reasons, they've already failed.

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